The great face furniture hunt is on! I know, I know, I was meant to write a post about redressing the balance between being deaf and being hearing but yesterday gave me new insight into living with a CI and so I’m concentrating on that first. I’m seeking that rare beast, a pair of specs which will co-exist happily with my processor on my little ear AND cope with my very strong prescription! I had my eyes tested on Friday and went on the specs hunt yesterday and today.
I currently have a great pair of glasses which have a very thin arm and sit just right above my ear. They are so light and the arm so thin, bypassing the scar so neatly that I didn’t have to take the arm off following surgery, as some people find they have to for a few days after the operation. Implant positioning, including the internal magnet and pedestal, varies according to the physiology of the individual: size of head, size of ear, any individual quirks or malformations etc. Now I have quite a small head and little ears so the lower edge of the internal magnet piece is quite close to the back of my ear, probably about an inch away, meaning that I can’t have glasses with thick or rigid arms. At the same time, even though it is as tiny as you can get, the arm is actually competing for space with my processor behind the ear and both JUST fit together on my ear without pushing the processor off my ear. Anything thicker and the processor sits far less securely on my ear. Sadly the funky specs currently available with very thick ear-pieces make it difficult to find something suitable. Additionally some of the rubber covers for thin metal arms have a sharp edge which could rub on my scar – though I’m told they could be customised to fit the whole length of the arm, or be trimmed down so they don’t scratch.
Thin arms seem to come more routinely with rimless glasses and I’d really like a pair of rimless ones – but the high prescription in my right eye means that even with ultrathin plastic lenses it is difficult to fit that lens into rimless frames. I found a lovely pair in a supermarket opticians yesterday – rimless, with thin titanium arms, wide enough vertically to have the funky fashionable look, but thin enough horizontally not to compete with my processor behind the ear. The rubber tips were lovely and soft and the whole just sat really comfortably behind the ear, bypassing the internal component nicely. They ticked all the boxes for comfort and looks for me, and I really want them – but they’d only be fine with my left eye. The right is a different matter entirely at -8 . . .
Back to square one: I might have to consider getting my current pair reglazed. My options at the moment are very limited and the great face furniture hunt continues. One optician suggested having teens’ glasses as I could have them made a little wider: my head really isn’t that big so it would be feasible. It is possible that with advances in technology the ultrathin lenses will gradually encompass stronger and stronger prescriptions, but I want to see well now, and being deaf it is pretty much imperative to complement my defective hearing with as much clarity of vision as I can muster – even if I now hear well enough at the optician’s to understand what is said when tested in the dark or behind the lens machine.
Pre-implant I had to have things explained to me before being plunged into the dark, or pop my head out from behind the lenses to try and lipread the optician’s instructions. Enduring the blinding flashes of retinal photography was terrifying -last time I was so blinded in my right eye I insisted on waiting until the vision had recovered before they did the same to the left – the thought of being unable to see to communicate, even if only briefly, was horrifying. I think a year ago that was a new one on them, and now explaining my CI-influenced limitations to various optical assistants I get the feeling I’m leaving an equally bemused trail of folk behind me.
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Steven said:
Hi
I work in an opticians in Spain and this morning I had a father come in asking me about special glasses that can be adapted to fit to the earpiece of his 2 year old daughters implants. I have to say that I am a bit lost in the world of implants and investigating via the web I ended up here.
Have you got any furthur information, follow-up or advice I can pass on. The poor little girl has a physical disabilty, coclear implants and now needs glasses…all at two years old!! I’d really love to be able to help the parents out.
Thanks
Steven
deaflinguist said:
Hello Steven,
Sorry to be late replying – I’ve been away and I know you will be looking for an answer.
The little girl’s ears will be quite tiny and the implant processor (the behind-the-ear bit) will be quite large, she will also have what will feel like quite a big bump on her little head – that’s the internal implant. It’s not actually that big and not actually that noticeable, but its positioning is key and will vary from individual to individual, naturally.
For me and for this little girl I suspect, too, there are two main things that you will probably need to consider in getting the spectacles just right for your client:
1. that the arms of the glasses are not jostling for space on the top of her ears with the processor, and making it insecure. There’s also the weight factor to consider – so thickness and weight of the arms – the thinner and lighter the better. If you can get lighter plastic lenses – I wear varifocals and have a very high prescription for short sight, so in past times I would have had to have very thick and heavy glass lenses. Not any more! I am sure that for such a young child plastic lenses are more desirable anyway.
2. Is the arm light, short and flexible enough to be bent away from the bottom edge of the implant? – depending how high it is set on her head it would be desirable for the end of the arm not to cause any friction on the edge of the implant below the skin, especially if the implants are recent. Also, there will be a little hollow behind her ear and I’d imagine it’s probably also desirable in a young child that the arm does not nestle in this hollow and cause friction there either.
If she has implants in each ear then the position may vary slightly from one side of the head to the other – surgeons do try and line them up, but it depends on the individual’s anatomy. So it may be that on one side where it misses the edge of the implant, the other arm may sit on it, so it may be helpful to make slightly different arm adjustments to each side as required.
These considerations are probably more important with such a young child who may not necessarily be able to articulate what is wrong, especially if there’s any speech delay because of the deafness and/or other disabilities and it will be important they are as comfy as possible. Any pain on the ear or difficulties with keeping the processor on could discourage her from wearing her processors and if she is reluctant to use them then she won’t get the full benefit of them, so while it seems a small thing to change the arms, it is ultimately of huge benefit to the little girl in a wider sphere than her sight.
Being deaf she will be using her eyes to the max to lipread and make sense of the noises of the world around her, especially if the implants are recent.
I thoroughly recommend the Silhouette brand as it is possible to get rimless glasses (again, taking away the weight) with very narrow, flexible, and light arms, with very nicely rounded ends – no hard bits of plastic, no sharp edges, all nice, smooth and rounded. The arms were shaped entirely to my requirements. I have heard a number of CI users on other forums also praise this brand for their needs. You may find other local or international brands that have similar light, flexible, thin, properties. Let us know the outcome and how she and her family get on and thank you for getting in touch!
Steven said:
Thanks very much for these insights. I’ll certainly let you know how we get on.